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Journey To Cure Severe Aplastic Anemia
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Tag: Rady’s Children Hospital

Day +5 STAY STONG

April 29, 2019 Nicole Johnson Leave a comment

Noah had a great day today. He completed school, physical therapy, and daily walks. At 5:00pm he became extremely nauseous…

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Filed under: Aplastic Anemia, Blood Disease, bone marrow, bone marrow donor, Bone Marrow Transplant, charity, chemotherapy, disease, Rady’s Children Hospital, Ronald McDonald House, stay strong

Day +4 Tough Situations Build Strong People

April 28, 2019 Nicole Johnson Leave a comment

Noah started his day at 5:30am, when he threw up on the floor next to his bed. He’s still feeling…

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Filed under: amino suppressant, apheresis, Aplastic Anemia, Blood Cells, Blood Disease, blood donor, bone marrow, Bone Marrow Transplant, chemotherapy, Rady’s Children Hospital

Day +3 Everyday Is A New Day

April 27, 2019 Nicole Johnson 1 Comment

Everyday it breaks our hearts to see our son in horrible pain and we can’t trade places with him. Noah received…

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Filed under: Aplastic Anemia, Blood Disease, bone marrow, Bone Marrow Transplant, chemotherapy, cytoxan, engraftment, fludarabine, Rady’s Children Hospital

Day +1 Bitter Sweet

April 25, 2019 Nicole Johnson 3 Comments

Lucas got his line removed and is wanting to run down the hallways. He requested a late checkout and was…

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Filed under: apheresis, Aplastic Anemia, Blood Disease, blood donation, blood donor, bone marrow donor, Bone Marrow Transplant, chemotherapy, Rady’s Children Hospital, Red Blood Cells

Day -1 Gift Of Blood

April 23, 2019 Nicole Johnson 2 Comments

Noah was alert and talkative but still feeling nausea and tired. He had a platelet transfusion early this morning. Lucas had…

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Filed under: apheresis, Aplastic Anemia, bone marrow donor, Bone Marrow Transplant, chemotherapy, Rady’s Children Hospital

Day -4 Fever, Chills & Nausea

April 20, 2019 Nicole Johnson Leave a comment

Noah had a very tough day, He received 3 different types of chemo, fludarabine, ATG and cytoxan. He had some…

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Filed under: Aplastic Anemia, ATG, Bone Marrow Transplant, chemotherapy, cytoxan, fever, fludarabine, GCSF, nausea, Rady’s Children Hospital, transplant unit

Journey Begins

April 16, 2019 Nicole Johnson 7 Comments

Tomorrow Noah starts day -6 of his transplant process. We will count backwards to day 0. Day 0 is transplant…

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Filed under: Aplastic Anemia, Blood Cells, Blood Disease, Bone Marrow Transplant, Noah Johnson, Platelets, Rady’s Children Hospital, Red Blood Cells, White Blood Cells

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