Wow, we can’t believe it’s been 30 days since transplant. The last couple of months have been a blur. This has been a big life changing event for our entire family. So much has happened so fast and were all still trying to catch up mentally. We haven’t had time to think, just reacted.
Noah has been through so much since February. I’m amazed everyday how strong this kid is. He’s had over 30 blood transfusions, 3 surgeries, chemotherapy, bone marrow transplant and the list goes on.
Today Noah had his bone marrow biopsy surgery. As they took us back to the procedure area, we had flashbacks of his first biopsy. The last time Noah had a biopsy was in February, when he was first diagnosed. We had different unknown scared feelings then because we didn’t know his future. Now we go in with hope that the transplant worked and we’re looking forward to the test results. Noah was released to come home after the surgery. We should have the test results at his next doctor’s appointment on 5/28.
Tons of test are done during Noah’s doctor’s appointments. He had a positive test for a virus called Cytomegalovirus. His doctor started him on an additional medication called valganciclovir. If the virus levels increase, he will be admitted into the hospital for treatment through IV. This virus is common and many of us carry it but our immune systems are stronger.
Transplant recipients can get infections easier because their immune systems are suppressed. It is also more difficult for transplant recipients to recover from infections, and minor infections can become very serious.
We are so thankful that Noah is home but we are always on high alert with Noah’s health. Everyday we check for bruising, fevers and bleeding.
Constant cleaning and sanitizing everything has become our new normal. I’m sure we go over and beyond what is required but we don’t want Noah to get sick or be hospitalize. If Noah gets sick it could be critical and life threatening. Constant hand washing has become habit. Tons of laundry is done everyday day to keep everything clean.
Everyday we hope we’re getting closer to getting our healthy son back. We want Noah healthy and normal again. We’re so grateful that Noah has a chance to have a healthy life and he is aware that not everyone does. #noahstrong
If you would like to support HOPE 4 NOAH with a charm bracelet, visit his Fundraiser Page…
White blood cells (WBC) 4.1
Hemoglobin (HGB) 10.5
Platelets (PLT) 74
Absolute neutrophils count (ANC) 2972